Research Article

Predictive Factors of Life Balance in Mothers of Children with Cerebral Palsy

Abstract

Objectives: Having a child with cerebral palsy (CP) is a stressful experience for the family specially mothers. Caring of this children take a lots of time and energy from family. The balance of life may be decreased by the influence of factors related to the child or mother. Therefore, the present study intended to investigate the predictive factors affecting the life balance of mothers with CP.
Methods: This study was a cross sectional descriptive-analytical research that conducted in Ahvaz in 2021. A total of 135 mothers (mean age= 33.37(7.93)) with at least one children under the age of ten CP participated in this research. Data were collected using life balance index, general health questionnaire, time management quality, and demographic information checklists. GMFCS E&R and MACS were used to determine the level of gross motor and manual ability function. To investigate the effect of predictor variables on the quantity of life balance, generalized univariate linear models were used.
Results: Life Balance of mothers of children with CP was very unbalanced (45.2%) or unbalanced (35.6%). Based on regression coefficient of each variable, it was determined that MACS (B = 0.192), comorbidity in the children with CP (B= 0.187), gross motor function (B= 0.137), general health (B= 0.024) and maternal age (beta = 0.01), respectively, contributed the most in the prediction of life balance variances.
Conclusion: Life balance is a serious affected domain in mothers caring CP children. Child-related factors had a more effective role in predicting the life balance of mothers of CP children than mother-related factors.

1. Nazi S, Shafaroodi N, Lajevardi L, Mehraban AH, Yazdani F, Hosseinzadeh S. Life Balance of mothers of children with Cerebral Palsy. International Journal of Clinical Medicine. 2017;8(11):583.
2. Matuska K. Validity evidence of a model and measure of life balance. OTJR: Occupation, Participation and Health. 2012;32(1):229-37.
3. Kaya K, Unsal-Delialioglu S, Ordu-Gokkaya NK, Ozisler Z, Ergun N, Ozel S, et al. Musculo-skeletal pain, quality of life and depression in mothers of children with cerebral palsy. Disability and Rehabilitation. 2010;32(20):1666-72.
4. Crowe TK, Florez SI. Time use of mothers with school-age children: a continuing impact of a child's disability. American Journal of Occupational Therapy. 2006;60(2):194.
5. Ahmadi Kahjugh M, Rassafiani M, Hoseini S, Sourtiji H. Comparing the patterns of time use and satisfaction of time management among mothers of children with cerebral palsy and mothers of healthy children. Journal of Research in Rehabilitation Sciences. 2012;8(1):10-7.
6. Prudente COM, Barbosa MA, Porto CC. Relation between quality of life of mothers of children with cerebral palsy and the children's motor functioning, after ten months of rehabilitation. Revista Latino-Americana de Enfermagem. 2010;18(2):149-55.
7. Paneth N, Hong T, Korzeniewski S. The descriptive epidemiology of cerebral palsy. Clinics in perinatology. 2006;33(2):251-67.
8. Joghataei MT, Mohammad K, Rahgozar M, Siadati S. Prevalence of some paralysis and limb amputation disabilities in Iran national epidemiological survey. Archives of Rehabilitation. 2002;3(1):7-16.
9. Donovan JM, VanLeit BJ, Crowe TK, Keefe EB. Occupational goals of mothers of children with disabilities: Influence of temporal, social, and emotional contexts. American Journal of Occupational Therapy. 2005;59(3):249-61.
10. Rezaei M, Malekpour M, Rassafiani M. Assessment of knowledge of Iranian occupational therapists of handling of children with cerebral palsy. Occupational therapy international. 2014;21(2):63-70.
11. Nazifi M, Mokarami H, Akbaritabar A, Faraji Kujerdi M, Tabrizi R, Rahi A. Reliability, Validity and Factor Structure of the Persian Translation of General Health Questionnaire (GHQ-28) in Hospitals of Kerman University of Medical Sciences. Journal of Fasa University of Medical Sciences/Majallah-i Danishgah-i Ulum-i Pizishki-i Fasa. 2014;3(4).
12. Dehghan L, Abdolvahab M, Bagheri H, Dalvand H, Faghih Zade S. Inter rater reliability of Persian version of Gross Motor Function Classification System Expanded and Revised in patients with cerebral palsy. Daneshvar Medicine. 2020 Sep 26; 18(6):37-44.
13. Riyahi A, Rasafiyani M, AkbarFahimi N, Karimlou M. Reliability of the Persian version of manual ability classification system (MACS) between parents and therapists in children with cerebral palsy. Archives of Rehabilitation. 2012;12:14-21.
14. Fatudimu MB, Hamzat TK, Akinyinka OO. Comparative quality of life of Nigerian caregivers of children with cerebral palsy. International Journal of Therapy and Rehabilitation. 2013;20(3):131-5.
15. Dehghan L, Dalvand H, Feizi A, Samadi S.A, Hosseini, S.A. Quality of life in mothers of children with cerebral palsy: The role of children's gross motor function. Journal of Child Health Care. 2016, 20(1), 17-26.
16. Glinac A, Matović L, Delalić A, Mešalić L. Quality of Life in Mothers of Children with Cerebral Palsy. Acta Clin Croat. 2017; 56(2):299-307. DOI: 10.20471/acc.2017.56.02.14
17. Gunal A, Pekcetin S, Wagman P, Hakansson C, Kayihan H. Occupational balance and quality of life in mothers of children with cerebral palsy. British journal of occupational therapy. publish online May 2021. doi.org/10.1177/0308022621995112
18. Stanca L. The geography of parenthood and well-being: do children make us happy, where and why? World Happiness report 2016. 2016:88-102.
19. Kuipers J, Van Leugenhaege L, Van de Craen N, Van den Branden L, Bleijenbergh R, Mestdagh E, et al. Factors Influencing the Maternal Life Balance of Flemish Mothers, a Cross-Sectional Study. Applied Research in Quality of Life. 2019:1-17.
20. Curran A, Sharples P, White C, Knapp M. Time costs of caring for children with severe disabilities compared with caring for children without disabilities. Developmental Medicine & Child Neurology. 2001;43(8):529-33.
21. Abanto J, Carvalho TS, Bönecker M, Ortega AO, Ciamponi AL, Raggio DP. Parental reports of the oral health-related quality of life of children with cerebral palsy. BMC Oral Health. 2012;12(1):15.
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IssueVol 18 No 1 (2024) QRcode
SectionResearch Article(s)
DOI https://doi.org/10.18502/jmr.v18i1.14732
Keywords
Predictive factor, life balance, cerebral palsy, mothers
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How to Cite
1.
Bastami L, Jahantabi-Nejad S, Ghasemzadeh R, Akbari M, Dastoorpour M. Predictive Factors of Life Balance in Mothers of Children with Cerebral Palsy. jmr. 2024;18(1):76-83.