Expectations of Mothers of Children With Cerebral Palsy Regarding Physical Therapy

  • Sajida Dilawar Jinnah Sindh Medical University, School of Physiotherapy, Karachi, Pakistan.
  • Amna Yaseen Mail DPT- Baqai Medical University- Lecturer, Baqai Institute of Physical Thera Rehabilitation Medicine, Karachi, Pakistan.
  • Reeta Mahesh Senior Lecturer, Dow university of Health Sciences, Institute of Physical Medicine And Rehabilitation, Karachi, Pakistan.
  • Muhammad Saad Khan Jinnah Post Graduated Medical Centre, School of Physiotherapy, Senior Lecturer, Karachi, Pakistan.
Keywords:
Movement disorder, Mobility intervention, Motor skills, Cognition, Primary care

Abstract

Introduction: This study aimed to find out the expectations of mothers of children with cerebral palsy (CP), who are engaged in rehabilitation programs, especially in physical therapy treatment.
Materials and Methods: Clinical types and gross motor function levels of the children were documented. A questionnaire consisting of 6 open-ended questions was used to define the expectations and views of the mothers of CP children about the physiotherapy and rehabilitation programs for the children. A total of 100 mothers were interviewed through an observational study with six open-ended questions along with demographic data.
Results: There was no significant agreement regarding the applied treatment methods and the appropriateness of the rehabilitation programs.
Conclusion: The expectations of mothers of CP children are not as high as they wanted from rehabilitation according to their children’s needs.

References

Ketelaar M, Vermeer A, Hart HT, van Petegem-van Beek E, Helders PJ. Effects of a functional therapy program on motor abilities of children with cerebral palsy. Physical Therapy. 2001; 81(9):1534-45. [DOI:10.1093/ptj/81.9.1534] [PMID]

Rosenbaum PL, Walter SD, Hanna SE, Palisano RJ, Russell DJ, Raina P, et al. Prognosis for gross motor function in cerebral palsy: Creation of motor development curves. Journal of the American Medical Association. 2002; 288(11):1357-63. [DOI:10.1001/jama.288.11.1357] [PMID]

Ketelaar M, Volman MJ, Gorter JW, Vermeer A. Stress in parents of children with cerebral palsy: What sources of stress are we talking about? Child: Care, Health and Development. 2008; 34(6):825-9. [DOI:10.1111/j.1365-2214.2008.00876.x] [PMID]

Platt MJ, Cans C, Johnson A, Surman G, Topp M, Torrioli MG, et al. Trends in cerebral palsy among infants of very low birth weight (<1500 g) or born prematurely (<32 weeks) in 16 European centres: A database study. Lancet. 2007; 369:43-50. [DOI:10.1016/S0140-6736(07)60030-0]

Fowler EG, Kolobe TH, Damiano DL, Thorpe DE, Morgan DW, Brunstrom JE, et al. Promotion of physical fitness and prevention of secondary conditions for children with cerebral palsy: Section on pediatrics research summit proceedings. Physical Therapy. 2007; 87(11):1495-510. [DOI:10.2522/ptj.20060116] [PMID]

King GA, Rosenbaum PL, King SM. Evaluating family‐centred service using a measure of parents’ perceptions. Child: Care, Health and Development. 1997; 23(1):47-62. [DOI:10.1046/j.1365-2214.1997.840840.x] [PMID]

Stevens S. Definition and classification of cerebral palsy. Developmental Medicine and Child Neurology. 2005; 47(8):509-10. [DOI:10.1017/S0012162205231006]

Jacqui S. The experience of caring for a child with cerebral palsy in rural communities of the Western Cape, South Africa [MA. thesis], Stellenbosch: Stellenbosch University; 2015. http://hdl.handle.net/10019.1/96731

Kavlak E, Altuğ F, Cavlak U, Kavlak HA, Şenol H. Expectations from rehabilitation of children with Cerebral Palsy: the agreement between the physiotherapists and mothers. Journal of Physical Therapy Science. 2014; 26(8):1209-13. [DOI:10.1589/jpts.26.1209] [PMID] [PMCID]

LaForme Fiss A, Chiarello LA, Bartlett D, Palisano RJ, Jeffries L, Almasri N, et al. Family ecology of young children with cerebral palsy. Child: Care, Health and Development. 2014; 40(4):562-71. [DOI:10.1111/cch.12062] [PMID]

Wiart L, Ray L, Darrah J, Magill-Evans J. Parents’ perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disability and Rehabilitation. 2010; 32(3):248-58. [DOI:10.3109/09638280903095890] [PMID]

Huang YP, Kellett U, St John W. Being concerned: Caregiving for Taiwanese mothers of a child with cerebral palsy. Journal of Clinical Nursing. 2012; 21(1‐2):189-97. [DOI:10.1111/j.1365-2702.2011.03741.x] [PMID]

Carnahan KD, Arner M, Hägglund G. Association between Gross Motor Function (GMFCS) and Manual Ability (MACS) in children with cerebral palsy. A population-based study of 359 children. BMC Musculoskeletal Disorders. 2007; 8(1):50. [DOI:10.1186/1471-2474-8-50] [PMID] [PMCID]

Damiano DL. Activity, activity, activity: Rethinking our physical therapy approach to cerebral palsy. Physical Therapy. 2006; 86(11):1534-40. https://doi.org/10.2522/ptj.20050397

Mobarak R, Khan NZ, Munir S, Zaman SS, McConachie H. Predictors of stress in mothers of children with cerebral palsy in Bangladesh. Journal of Pediatric Psychology. 2000; 25(6):427-33. [DOI:10.2522/ptj.20050397] [PMID]

Piggot J, Hocking C, Paterson J. Parental adjustment to having a child with cerebral palsy and participation in home therapy programs. Physical & Occupational Therapy in Pediatrics. 2003; 23(4):5-29. [DOI:10.1080/J006v23n04_02]

Huang YP, Kellett UM, St John W. Cerebral palsy: experiences of mothers after learning their child’s diagnosis. Journal of Advanced Nursing. 2010; 66(6):1213-21. [DOI:10.1111/j.1365-2648.2010.05270.x] [PMID]

Kumar R, Lakhiar MA, Lakhair MA. Frequency and severity of depression in mothers of cerebral palsy children. Journal of Liaquat University of Medical and Health Sciences. 2016; 15(3):147-51. https://www.lumhs.edu.pk/jlumhs/Vol15No03/pdfs/10.pdf

Milbrath VM, Cecagno D, Soares DC, Amestoy SC, Siqueira HC. Being a woman, mother to a child with cerebral palsy. Acta Paulista de Enfermagem. 2008; 21(3):427-31 [DOI:10.1590/S0103-21002008000300007]

Hostler SL. Pediatric family-centered rehabilitation. The Journal of Head Trauma Rehabilitation. 1999; 14(4):384-93. [DOI:10.1097/00001199-199908000-00007] [PMID]

Gibson BE, Teachman G, Wright V, Fehlings D, Young NL, McKeever P. Children’s and parents’ beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy. Child: Care, Health And Development. 2012; 38(1):61-9. [DOI:10.1111/j.1365-2214.2011.01271.x] [PMID]

Pousada M, Guillamón N, Hernández-Encuentra E, Muñoz E, Redolar D, Boixadós M, et al. Impact of caring for a child with cerebral palsy on the quality of life of parents: a systematic review of the literature. Journal of Developmental and Physical Disabilities. 2013; 25(5):545-77. [DOI:10.1007/s10882-013-9332-6]

Published
2020-10-27
How to Cite
1.
Dilawar S, Yaseen A, Mahesh R, Saad Khan M. Expectations of Mothers of Children With Cerebral Palsy Regarding Physical Therapy. jmr. 14(4):245-252.
Section
Research Article(s)